Pediatric medically complex patient

Medically Complex Children

When your child has chronic complex medical conditions that require ongoing care by several pediatric specialists and possibly specialized medical equipment, the Medically Complex Primary Care at Nemours Children’s Health can serve as your child’s primary care medical home.

Medically Complex Primary Care at Nemours Children’s Health


Wolfson Children's Hospital
Nemour's Children's Hospital

Wolfson Children's Hospital provides a medical home for medically complex children in collaboration with Nemours Children's Health, Jacksonville.

Why Wolfson

  • Our caring team is here to help you navigate all the medical services and referrals your child needs.
  • A doctor or nurse who knows your child is always available by phone, 24/7.

Coordinated Care

We work closely with your child’s medical specialists and other service providers. That means parents don’t have to remember every detail of multiple office visits or shuffle through paperwork to find the information our team needs to provide the best care.

Services Offered for Complex Conditions

  • Comprehensive primary care visits
  • Care coordination
  • Medication management
  • Durable medical equipment coordination
  • Social work and family support
  • School and therapy support
  • Transition planning between hospital and home

Medically Complex Primary Care at Nemours Children’s Health


Wolfson Children's Hospital
Nemour's Children's Hospital

Wolfson Children's Hospital provides a medical home for medically complex children in collaboration with Nemours Children's Health, Jacksonville.

Common Conditions Treated

Technology Dependence & Intensity of Care

  • Tracheostomy and/or ventilator dependence
  • Feeding tubes (G-tube, GJ-tube) and TPN or enteral nutrition
  • Oxygen, CPAP, or continuous cardiorespiratory monitoring

Medically Fragile & Multisystem Conditions

  • Complex congenital syndromes and chromosomal disorders
  • Severe cerebral palsy with multisystem involvement
  • Transplant-related conditions

Neurologic & Neuromuscular Conditions

  • Spinal muscular atrophy (SMA)
  • Medically refractory epilepsy
  • Severe neurodevelopmental disorders requiring high medical support

Don't see the condition you're looking for?

Call 904.697.3600

Team

We are experienced in the care of children with multiple, complex medical conditions. The team of pediatricians, pediatric nurse practitioners, social workers and registered nurse care coordinators focus on the specialized needs of your child and family.

Location

The Medically Complex Primary Care at Nemours Children’s Health is located next to the Wolfson Children’s campus in downtown Jacksonville.

Medically Complex Primary Care at Nemours Children’s Health
841 Prudential Drive
Suite 300
Jacksonville, FL 32207
904.697.3600

Transition to Adult Care

The transition from pediatric health care to adult-oriented health care can be very complicated for people with disabilities and chronic health conditions. The Jacksonville Health and Transition Services (JaxHATS) clinic was created to help make this transition easier. JaxHATS serves ages 16-26, with chronic medical or developmental problems. To learn more, call 904.244.9344.

Patient Stories

  • Pediatric brittle bones disease patient Gage

    This smile can't break

    Nine-year-old Gage doesn't let osteogenesis imperfecta, also known as “brittle bone disease," hold him back.

    Read Gage's Story
  • Coordinated care pediatric patient Norah

    Coordinated care a blessing

    Norah has spina bifida and receives coordinated care from 10 pediatric physician specialists.

    Read Norah's Story