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Wolfson Children's Hospital Congenital Heart Defects

Congenital Heart Defects in Children

A congenital heart defect is a problem with the heart that a baby is born with. Most conditions are now diagnosed before or just after birth, and advances in treatments are making it possible to fix most defects. At Wolfson Children’s Hospital, children with congenital heart defects are diagnosed using the latest technology and receive the most advanced treatments available.

C. Herman and Mary Virginia Terry Heart Center

Wolfson Children’s Hospital provides pediatric cardiology in partnership with University of Florida College of Medicine, Jacksonville. Learn more

Experience you need

Children need care, equipment and procedures designed specifically for their small bodies and tiny hearts. You can rest assured knowing everyone at the Terry Heart Center — doctors, nurses, technologists and other team members — has vast experience providing lifesaving cardiac care to children of all ages. Every year, Wolfson Children’s cardiovascular experts provide care and management of congenital heart disease in our state-of-the-art facilities for more than 8,000 children and adults for a wide range of heart conditions.

C. Herman and Mary Virginia Terry Heart Center

University of Florida College of Medicine, Jacksonville Wolfson Children’s Hospital

Wolfson Children’s Hospital provides pediatric cardiology in partnership with University of Florida College of Medicine, Jacksonville. Learn more

Conditions We Treat

  • Aortic and mitral valve disease
  • Atrial septal defects
  • Aortic valve stenosis
  • Atrioventricular canal defects
  • Coarctation of the aorta
  • Complex congenital heart defects
  • Mitral valve stenosis
  • Double-outlet RV (right ventricle)
  • Ebstein’s anomaly
  • Hypoplastic left heart syndrome
  • Patent ductus arteriosus (PDA)
  • Single ventricle palliation
  • Tetralogy of Fallot
  • Total anomalous pulmonary venous connection
  • Transposition of the great arteries
  • Truncus arteriosus
  • Vascular ring
  • Ventricular septal defects

Diagnosing heart defects before birth

Routine ultrasounds and prenatal tests are revealing heart defects in children before they are even born. This is probably a diagnosis you didn’t anticipate, but our special programs run by experienced heart specialists are designed to help you through this.

Fetal Cardiac Clinic

Our Fetal Cardiac Care Clinic uses fetal echocardiography (a sonogram of the baby’s heart) to confirm a diagnosis and pinpoint the exact condition. Parents receive information and prenatal education to help them understand the type of heart defect their unborn baby has, as well as the treatments or surgeries that may be needed.

Parents also can meet the pediatric cardiothoracic surgeons and take tours of the Newborn ICU and Cardiovascular ICU. The tours give parents a chance to see the facilities and meet the staff who will be caring for their baby after any surgery. Parents also appreciate the opportunity to talk to each other through clinic support groups.

This early diagnosis, education, support and planning will help ensure a safe birth, as your baby’s team will be on standby to quickly give your child needed care and support.

Treatment of congenital heart defects in children

Depending on your child’s condition, only close monitoring or treatment with medicine may be needed. Some conditions require minimally invasive cardiac catheterization, or more serious treatment, such as heart surgery.

Minimally invasive procedures

When possible, heart specialists at Wolfson Children’s Hospital conduct minimally invasive heart procedures, helping your child receive lifesaving care with a lower risk of infection, pain or bleeding. These surgeries are performed in our state-of-the-art Cardiac Catheterization Lab and have a quicker recovery time than surgeries of the past so your child can get back to the important work of being a kid.

Cardiac Catheterization Laboratory

Sometimes catheters are used for diagnosis or treatment of congenital heart defects. Specialists in our Cardiac Lab use the most advanced technology to perform these minimally invasive procedures.

Cardiac Catheterizations in 2016

Created with Highcharts 5.0.10 32.0 %13.0 %33.0 %22.0 % ElectrophysiologyPacemakers/implantable cardioverter defibrilationsInterventional cardiac catheterizationsDiagnostic cardiac catheterizations Highcharts.com Interventional cardiac catheterizationsCatheterizations: 33.0%
  • Balloon angioplasty

    Pediatric cardiologists use a balloon to open a narrowed heart vessel

  • Balloon valvuloplasty

    Similar to angioplasty, but the balloon-topped catheter opens a narrowed heart valve

  • Arrhythmia ablation

    Correction of heart arrhythmia using a catheter and a type of energy (such as heat) to destroy the source of the irregular rhythm

  • Stent placement

    Placement of small mesh wire devices to support abnormal blood vessels

  • Device closures

    To close a hole between the two upper chambers of the heart or an abnormal vessel.

  • Valve implantation

    Placement of a valve in the pulmonary position that minimizes the need for repeat surgeries.

High-Tech Facilities

In our hybrid vascular operating room (OR), technologies and capabilities combine to create part imaging suite, part catheterization lab and part operating room. We no longer need to transfer the patient to different parts of the hospital for different procedures, resulting in enhanced patient safety and outcomes.

The imaging quality in the hybrid OR is far superior, too. Better imaging translates into better results for the patient because the physician can more clearly assess progress during procedures. The real-time confirmation that repairs are working during the surgery also reduces the time a patient spends in the OR.

Wolfson Children's Hospital High-Tech Facilities

Cardiovascular Intensive Care Unit

Our 12-bed Cardiovascular Intensive Care Unit (CVICU) is specialized just for children and some adults with congenital heart disease who require close care and monitoring following catherization procedures and surgical repairs. The CVICU is managed by a team of cardiac intensivists (Critical Care Physicians) who are trained and experienced in caring for hearts of all ages with congenital defects.

Our Team

From complex heart surgeries to lifelong care, our congenital heart specialists have the unique expertise needed to care for little hearts. Our specialized team is a collaboration of cardiologists, electrophysiologists, board-certified cardiothoracic surgeons, cardiac anesthesiologists, cardiovascular nurses and rehabilitation therapists working together to deliver the highest level of individualized care for your child.

Family Support

Though a diagnosis can feel overwhelming, the doctors, team members and community at Wolfson Children’s Hospital are here to help your family. In addition to medical care, we will also help you find support groups in the community where you can talk to other families who have children with congenital heart defects.

Quality and Outcomes

Our Terry Heart Center is dedicated to the very best cardiac care and outcomes for every patient. We believe that what gets measured always gets better and this focus on quality ensures the best care for our patients. Our outcomes are some of the best in the country, and we provide this information so you can make better decisions about your child’s care.

Overall Survival Rates for Pediatric Heart Surgery1

2011–2015

Neonatal Heart Surgery Survival Rates

  1. Based on patient volumes for the last 4 years, totaling 766 cases
  2. STS Operative Survival Category STAT 4 and STAT 5 (the most complex pediatric heart surgical procedures)

Patient Stories

Daytona Beach Boy Born With Complex Heart Defects Thriving After Multiple Surgeries in Jacksonville

See how Derrick Schachte thrives, despite being born with four life-threatening heart defects, and immune and blood-clotting disorders.

Read Derrick’s Story

Best Girlfriends, Straight From the Heart

Two families formed a close-knit bond when their 4-year-old girls were born with a congenital heart condition.

Read Their Story